Wednesday, December 31, 2014

Dear Cashier,

Sound the alarm!  We were out of milk.  Now, this is a big deal to any family with five kiddos...or four...or any... but, to this special guy, this is a big deal.  You see, his main food group is cereal.  Honey Nut Cheerios to be quite exact.  He was hungry, and he wanted some cereal.  As I lovingly told him we were out of milk, my dear hubby offered to run to the store.  Titus decided he wanted to go too.  Alarms were now sounding off in my head.  What if the store was busy?  What if the line was too long, and he got overwhelmed?  The list of "what if's?" gets long quick.  After a moment's hesitation and a deep breath, my amazing hubby told Titus he could go.  A few moments later, they were off in "daddy's car", and I started praying for their quick trip.  Frankly, I held my breath until they returned. 

After about twenty minutes they returned, milk in hand, with a few stories.  Of course, the store was all decked out for Christmas, and Titus bounced around noticing all the "Santa" stuff.  This was the first year he even knew of the existence of Santa, and it was fun.  Richard told me of the bank teller's noticing his cute antics, and smiling at the cute little blond with his daddy, yelling, "Ho, Ho, Ho!" in his robust "Santa" voice. 

After successfully finding the much needed milk, they got in line.  The cashier noticed the four gallons of milk, and commented on how much milk it was.  Richard said something about the need to eat cereal plus five kiddos.  "Cereal? It's a little late for cereal!"  Titus picked up on the conversation, and made a slurping sound, rubbed his tummy, and exclaimed, "Yummy, cereal!!"  At this point, the cashier realized our son was a-typical, turned her head down, and finished the transaction as quickly as possible-not to say another word.  Part of me is glad I wasn't in the store with them.  Part of me is sad I wasn't there.  Not to lecture her, shame her, or let her know how disappointing her actions were, but to learn how amazing our boy is.  Not too long ago, he would not have made it through the store, let alone the check-out line.  Believe me when I tell you, I've had many "well-meaning" adults threaten to have my son, "clean the store" or "stay here without mom" or let me know what they did to kids in the "olden days."  And then, he did so much more than just survive a trip-he engaged-with words!  The magnitude of amazingness that is is almost impossible for me to share.  I just celebrated his third Christmas saying, "mom".  He is almost 6.  He couldn't even engage with his own mother for the first 2 1/2 years of his life, and now he did with a cashier. 

So, dear cashier, I understand you were uncomfortable.  Maybe you were afraid to offend.  I get that.  Maybe you have a painful story in your past-a family or friend who you watched struggle, and it stabbed your heart.  I get that, too.  Maybe, well, there are a thousand different scenarios that could fit here.  I want you to know I am not embarrassed of my son.  I am so proud of him, my heart feels like it could burst.  I am so grateful for how far he has come, for who he is.  I have five miracles in my life, and he is one of them.  And know this, if you had engaged him, he would have smiled at you, and probably come around the line and given you a huge hug.  And, for the record, he came home and had a huge bowl of cereal.  He had, after all, braved the store for just that. 

Tuesday, December 2, 2014

Ripping Off the Bandaid

The past few months in our home have been quite intense.  They have been surprising, painful, exhausting, wonderful, and so many more adjectives.  My special guy has been amazing.  The return to school was difficult, but he adjusted quickly.  His transition to full days, five days per week was remarkable.  Since the beginning of the school year, he has only had a handful of morning meltdowns-a stunning improvement.  In fact, he loves school so much, he actually will ask to go on Saturday's.  Not only this, but his love for his new sister has been such a pleasure to watch.  He will ask to kiss baby Chara.  He will say how sweet or how cute she is.  There never seemed to be a jealousy issue-perhaps confusion about where the little thing came from and how long she might stay, but not the crazy jealousy I was so afraid of. 

Then, therapy started.  The funding I had worked so hard to obtain came in, and we began his in-home therapy.  The first two months were easy.  It was the "data gathering" phase.  They followed him around our home, played whatever he wanted, and just worked to become his trusted friend.  As they "played" the therapists began to define his "maladaptive behaviors."  (I'm beginning to learn the clinical terms...)  In the past few weeks, they have defined these behaviors, and set in place areas to begin working on. 

For the past two and a half years, I've worked on figuring out how to stop melt downs.  I've learned the warning signs, and will stop in the middle of a sentence/action/activity to curb the coming storm.  Once a meltdown has started, I will use certain techniques to calm the situation.  In the past two weeks, therapy has seen the signs, looked them square in the face, and let them come.  They have things to accomplish, and their goal is not to calm him, but to help him learn to cope with stressors.  In the past two therapy sessions, we have seen two huge meltdowns-worse than I've seen in months.  After the second episode, I looked at his senior therapist and asked her if this was "normal" or expected.  She looked at me, as calm as could be, (reminded me of privacy laws), and said that they have seen this behavior before.  But, as momma, it is gut wrenching.  It's worse than taking off those nasty post-surgery bandaids.  I see him suffering, and I suffer with him.  I want to jump in and make it stop.  I want to protect him.  Unfortunately, though, all I'm doing is opening the "shell" for him.  Just as a baby chick has to open it's own shell to live, so must my son break open his own.  Now, this does not mean that I don't pay close attention to make sure he isn't pushed too far.  This, in no way, takes any responsibility away from me to watch over my son.  There is a process, though, that requires pain.  Just like I will never earn my first medal for finishing my first 10K without a lot of hard work (probably some tears, too...), so does he have to train for an even bigger event...life.  This is not just for a momentary pleasure like a medal, but this is so my sweet and amazing son can better function in his daily life for the rest of his life. 

It is humbling to watch him.  As difficult as it has been at times to be his momma, his work is SO much harder.  He has to learn to speak a language that is not his "mother tongue."  He has to learn to quiet his body when it wants to be "socially inappropriate."  He has to learn not to allow the overwhelming pressure of over-stimulation make him run.  This little boy is one of my heroes.  I'm so grateful the Lord chose me to be his momma.  I have this amazing gift running around my house, teaching me to cherish every single moment, and to never take anything for granted. 


Friday, September 26, 2014

I Remember

Twenty years ago today was a pivotal, life-altering day in my life.  I remember it like yesterday. 

I remember going to school and sitting in the gym...feeling like an elephant was on my chest.
I remember making it to first hour, and just needing to go home.
I remember my teacher, Miss Smith, mocked me and said to me, "Next time, come to school when you are healthy."
I remember my dad picking me up from school in the little black Nissan-full of irritation because he was in the middle of a bathroom remodel.  (He loathes house maintenance!)
I remember him sending me up to bed-you don't get to come home from school and play! 
I remember where my bed was-against the wall, in the corner. 
I remember hearing dad come up the stairs, thinking I was sleeping, and me making sure he heard me wheezing. 
I remember the doctor's office.  He checked my breathing, but no pneumonia, no pleurisy. 
I remember him walking out of the office to check a medical book.
I remember sitting on the table, looking at my dad, begging him to ask a question to the doctor.
I remember the little cup of water.
I remember the finger stick-I even remember the big meter they used.
I remember the doctor walking out again.
I remember my dad's tears...my heartbreak for his pain...and my confusion.
I remember going home to pack.
I remember the suitcase I used.
I remember my dad's phone call (from home...this was before cell phones!) to my mom, telling her we were going to Children's. 
I remember her response-thinking he was trying to cover for breaking one of the bathroom tiles she had bought!
I remember the plastic chair I sat in outside of the Admissions desk. 
I remember the bed, and the sudden amount of flurry.
I remember my first IV, the veins rolling, me trying to be still, the pain!
I remember Joan, my nurse.  "You can be anything you want to be, except a missionary...but why would you want to do that?!?" 
I remember the intern doctor I thought was awfully handsome.  (Give a girl a break...I was 13!)
I remember the visitors-I had a lot of visitors!
I remember the balloons-some even had my name on them.
I remember the teddy bear with the pacifier and the pens dad bought me.
I remember the praying bear Church bought, with satin angel wings.
I remember the hospital pull-out bed my mom slept in.
I remember the hourly arm or finger sticks they did.
I remember the team of doctors and nurses talking about how "lucky" I was-a few more hours, and I would have been in a coma, that would have caused my death.  
I remember waiting to be "cured," for when this crazy roller coaster could be over, and I could go back to drinking a Super-sized Mello Yello without trying to figure out how many carbs were in it. 

Like I said, a pivotal day in my life.  What I saw as punishment, God used as a refining fire to draw me to His desires for me.  To limit me, so I would have to listen to Him.  To help me to see how many abundant blessings He poured out on me.  To never take for granted life, and to appreciate the lives He graciously entrusted to me.  I learned that faith is not measured, the body will fail no matter how "healthy" we appear, and that we are only sustained each day by His loving, gracious, and sovereign Hand.  And I am grateful. 

Monday, September 8, 2014

To Cry or Not to Cry

It was a rough morning.  Saying anything different would be a pretty big lie.  He didn't want to get up.  He didn't want to get dressed.  He didn't want to eat.  He didn't want to brush his teeth or go to the bathroom.  He let me know loudly and with tears.  The list could go on, but I'm sure you get the idea.  We finally got out of the door, into the car, and drove the two minutes to school...edging on the late side, but close.  I prayed with him as we walked up to school, and he was settled for a moment.  A police officer was on the sidewalk, making sure kids and parents were following the street crossing rules.  I was going to stop and "introduce" Titus to him, I don't want him afraid of those who protect him!  As we walked by, Titus said, "Oh! Hello Officer!"  My surprise and joy bubbled right out of my mouth, and I didn't even care.  I was thrilled to the point of verbal exclamation that my precious boy knew, respected, and acknowledged the officer.  The officer greeted Titus, they shook hands (melt my heart!!!), and then we proceeded on. 

As we neared his entrance door, things started going south.  I got down on my knees, and held him.  Another prayer, some back rubbing, and a few kisses to try to calm him and let him know how much I love him.  Then, we sat on the sidewalk, waiting for his teacher.  She came out along with one the extra staff assigned to the room.  Titus was ready to run-pacing, crying, and verbalizing his desire to go home.  I looked to one of them, and asked her what they would prefer I do.  She told me to leave him there, and walk away.  I cannot express the vice-grip fear took at that moment.  If you've ever had a strong child run away, or watched an unknowing toddler run in front of a car, then you will know the almost paralyzing amount of fear I had.  I walked away, terrified at any moment I would see him darting toward the street.  As I walked down the sidewalk, other mom's were discussing their child's new friends in class.  The majority were in his class, but no one brought up his name.  So, I braced my shoulders, and walked as quickly to my car as I could.  Don't cry, not yet.  

An eternity later, I got to the car.  Breathe deep, don't cry, be tough.  I kept thinking this to myself over and over.  A moment later, a still and small voice chastened me.  Bring your tears to Jesus.  I think it will be one of those moments I will never forget.  For the first time in my life, I realized Jesus was waiting for me to crumple into His arms.  He completely knew and understood the heart-wrenching pain of a hurt child who is not relating to his peers.  I did not have to bare them alone.  I didn't even have to just, "take His hand."  I could fall-weak, broken, afraid...terrified, into His waiting arms, and He would comfort as only He can.  So, I cried.  Not the puffy-faced "poor me" cry, but a joy-filled release that let Jesus heal.  I'm sure I cannot put into adequate words how freeing it was to know that I am incredibly "not tough" and Jesus wants me that way-and meets me right where my knees fail (even when I'm sitting up and driving a car).  

Thursday, June 12, 2014

Taken For Granted

I began a list.  This list is slightly different, and not necessarily inspired by a quite famous book circulating among Christian ladies at the moment.  (NOT that there is anything wrong with her list!)  I think sometimes, in the mundane/the "normal" it is easy to take for granted things that don't come to every parent (or child).  As I have written about "several" times before, the Lord in His gracious sovereignty has given me two special boys who have truly helped me see amazement and wonder in the normality of daily life. 

Things I will never take for granted:

1.  Shoes-and the ability to wear them
2.  Socks-whether they have Spiderman (his first pair ever!), Avengers, Skylanders...and now just plain ole' white ones...a little boy willing to wear them.
3.  Cookies-you would be amazed at how helpful a cheap, off-brand oreo can be to encourage a will to bend.
4.  Giggles-there was a long time in which screaming was a LOT more prevalent than a belly laugh in our home.
5.  Hugs-After a meltdown.
6. Hugs-spontaneous, for no reason at all.
7.  A loving teacher-we have been abundantly blessed to have two years of amazing teachers who have loved our (sometimes unlovable) son.
8.  Words-they took SO long to come!  Whether the word is simple and a statement in and of itself, or a whole sentence-amazing!  The words are different than others' might be, but they are his, and they communicate...and it is awesome.
9.  A wave-the releasing of me.  The "it's okay momma, I'll stay here" kind.  The "I trust you to come back, and I'll go in" gesture...that sometimes comes with a blowing kiss.
10.  A hug and a kiss goodbye-sometimes two or three times before he can walk into school...making sure that I know he loves me...and wanting to be reassured in my love for him.  And I love it each time.  Sadly, I've seen other mom's on their second round of "goodbyes" get irritated at their child-yelling at them to get into school/back into line.  I hope his last forever...but when he hits that age that boys do...when it's just not "okay" to show physical affection to your momma anymore, I'll have some sweet memories.  And yes, other mom, I see you scoff...and I'll take your scoff any day to have an extra moment with my boy.
11.  A hand slipping into mine-melts me EVERY time!  He has just finally reached the point where he doesn't run away with every glimpse of freedom, and will actually slip his hand into mine, walking right beside me.  I'm not going to lie...it has caused me to tear up more than once.
12.  Siblings playing happily together-SO much training has gone to get even a few minutes of this wonderment.  The grace displayed by (especially) the older two at times to achieve happy harmony is amazing evidence of the Lord's love of our family.
13.  Obedience/Cooperation-Just last night, he obeyed when I asked him to pick up his cars (scattered all over the living room).  This used to be an impossible feat.  But, last night, he did it.  He was excited to obey, and I was just so amazed at how far he has come-and hugged him tight enough to make him wince. 

As I stated, this list is so far from exhaustive.  So much of these improvements/advancements have come in the last year.  It is so overwhelming (in SUCH a good way!) to watch him grow.  Psalm 139 states that from the womb, God knit every person together-designing and forming in His perfect way.  I get to stop and bask in the glow of His creation in my little ones.  It is beautiful and wonderful and so many other adjectives.  It is not easy, it is humbling, and it is unsure.  I think that is one of the most amazing things He has taught me.  I don't know what the future holds, but I know Who holds the future...and that is finally okay with me.  (Not that it matters, since it is the truth.)  As I've been teaching my older two, God designed our family in the perfect way.  He knew we would all love each other better than anyone else in the world.  He knew we needed the challenge to draw us to Him, and He loves us enough to want us to run to Him when it is difficult.  And that is quite hard to take for granted. 

Tuesday, April 29, 2014

Four Mornings a Week

Four mornings per week, for three hours, my life is so calm.  Calm, quiet, smooth...almost easy.  My older two play...sometimes even quarrel, but all things considered, are not difficult.  There is no screeching, little screaming, and even a little cleaning.  Beds get made, teeth get brushed, clothes get changed, breakfast gets served-eaten and cleared, and then some schoolwork gets done.  Richard gets his lunch made, we might even sit and have a cup of coffee (mine is decaf...but it still tastes a little like coffee...), and can actually have a small conversation before he heads to work.  If necessary, I can even run to the store quickly with the older two, and we get in and get out with relative ease.

No matter how you slice it, four sinners under one roof can lead to issues...especially when I am one of those sinners... But, it is easy.  Now, when I only had those two little cute ones, I had no idea how easy it was.  I had never been pushed to my absolute limit-and beyond that limit.  Frankly, I had never realized how completely and totally dependent I am on the Lord to parent each and every moment of my life.  If you have already realized this-you have much more wisdom than I had...and probably still have.  I had never realized how patient I could be when I had no other choice.  If my older two had pushed me the same way, my reaction would not have been patience (to put it mildly). 

I never worried about my kids learning and hearing the Gospel.  Now, my understanding of the Gospel has been radically transformed in the past year-and-a-half, so I had some bad theology that needed to be fixed.  In reality, though, I believed if I parented "well enough," said the "right things," and let them know church was where I wanted to be not had to be, they would get themselves right with God.  Like I stated, I had some bad theology! 

Honestly, as "easy" as those twelve hours are per week, I cannot wait for my boys to be home.  I am so grateful for my little gifts from God, who stretch me so much more than anything ever has.  The quiet distracts me after a few minutes.  I keep turning around waiting for those little feet to step on my heels.  I am so grateful that I know I cannot go to the Zoo or even the store without help-I am utterly dependent on others to make it through some of the "normal" things of a day.  How prideful I was (and still am!), and how easy was it to be, when I could be so independent...aka dependent on myself.  The Lord graciously gave me so much more than I could handle, so I would finally depend on Him.  He also had to teach me the hard way that not everything is worth defending.  It is quite difficult for me to let someone else think I am wrong on any matter-especially parenting.  (Another area for pride to be prevalent!) In the not-so-spiritual words of Anna and Elsa, I had to "let it go!" 

Parenting little ones with special needs is not easy.  There are days I wonder if I am doing anything right.  There are moments of utter heartbreak.  There are also sweet, precious moments I would overlook or miss if I didn't realize what amazing miracles they are.  I would miss so many blessings-they are there for everyone, everyday,  but I would not have seen them.  Somehow, God used "special needs" to show me my "neediness" and His love.  That is a miracle. 


Wednesday, February 5, 2014

For the Sake of ONE Soul

For the sake of ONE Soul, would you:

*Risk your "reputation" at work to tell someone hurting the Good News?

*Spend a few thousand dollars to travel halfway across the Globe, giving up personal vacation time to give up sleep, comfort, and possibly your health to share the Gospel with the hungry souls looking for Hope?

*Spend hours each week preparing a lesson to teach those ungrateful, uncaring, badly behaved kids in your Sunday School class-with the hope of them FINALLY hearing the His Word?

*Spend thousands of hours, hundreds of dollars, beg people to show up, decorate, plan, re-plan, find new workers-all for ONE week (20 hours or so) of a Vacation Bible School-even if you have low attendance, and NO ONE wants to help-for the sake of that ONE LOST SHEEP?

*Give up your hopes of ever being "rich" to go to Bible school, spending half of your life studying to Preach the Word, only to have many people tell you what a "waste of talent" you are-for the sake of His Kingdom?

*Go on nationalized television to debate a known atheist-knowing FULL WELL he will NOT change his mind-because one of the people watching or listening might actually come to a saving knowledge of Christ?

*Decide to set aside your expensive college education to be home with your kids-hearing all the time what a "waste of talent" your life is-to make sure you devote your life to sharing Christ with your kids?

*Gasp-Move to a country where you MIGHT DIE just for speaking His Name-might be imprisoned for bringing HIS WORD into the country-might be tortured-might watch your family be destroyed-for the one whose ETERNITY has been forever altered by the Truth you were willing to share?

There are so many more examples of those who have willingly laid down their lives, their time, their "talents", their hopes and dreams for the sake of just ONE.  I am passionate about this, because it is so easy to set it aside.  If we truly, I mean TRULY understood the hell of hell, we might actually get fired up to do something about it.  Yes, this post was brought together because of the debate-Ken Ham v. Bill Nye.  But it was SO much more than that.  I would believe Ham knew Nye was not going to change.  But, if you listened to what Ham said, you knew who he was speaking to, and Who he was speaking for.  Although I am quite certain Ham would love to see Nye come to a saving knowledge of Christ, there were thousands and thousands of people listening who are on their way to hell-and he KNEW it.  Did you see his passion?  Did you see his tears?  I did.  Ham has to walk around with a security team because those who hate God want. him. dead.  He knew what he was facing.  Do we?  Do we see the sheep JUMPING OVER THE EDGE every single day-to a certain eternal death?  So, instead of criticizing those who would sacrifice something or everything for just one sheep-perhaps we should hit our knees for them-then get up and get to work ourselves.